Total collected
BYN 493 771,01
Total collected (%)
100%
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Nazar Bobekh
Nazar Bobekh
09/30/2015, city of Mazyr, Gomel region

Nazar Bobekh

30.09.2015, city of Mazyr, Gomel region
  • Diagnosis: neyroblastoma
  • Fundraising goal: MIBG Therapy
Fundraising is over
Meet the child
The disease manifested itself in the summer of 2019. Since August, Nazar is undergoing a treatment according to the protocol in the Belarussian Research Center for Pediatric Oncology, Hematology and Immunology, Borovlyany. The kid is undergoing complex antitumor treatment successfully including MIBG therapy at the Russian Scientific Center of Roentgenology & Radiology of the Ministry of Health Russian Federation.

MIBG therapy is an up-and-coming treatment for advanced-stage neuroblastoma. Current treatment options including chemotherapy, surgery, radiation therapy, and stem cell transplantation are powerful, but not powerful enough. New therapeutic options are needed. MIBG is a molecule that is readily absorbed by neuroblastoma cells. MIBG can be a safer therapy than traditional radiation therapy, as it delivers the radiation directly to the tumor and minimizes exposure to healthy tissues. Additionally, it can radiate metastatic tumors throughout the body in one treatment, which is much more difficult with traditional radiation therapy. Therapy is scheduled for February 6, 2020.

In 2019 the MIBG-scrutiny was paid for the boy’s treatment. Funds were transferred by the general partner of the Gazprom Transgaz Belarus Fund under the program “Providing of medical assistance for children with oncological diseases program”.

To consolidate the results and to avoid recurrence of the disease, anti-GD2 antibody-containing immunotherapy is recommended. Effective immunotherapy holds particular promise for improving survival and quality of life, it is possible to achieve very good results in the treatment of nephroblastoma. 

Previously, children were sent to foreign clinics to receive immunotherapy. Ilyusha is the first child to whom this type of therapy will be conducted in Belarus. All necessary conditions are available at the Belarussian Research Center, only the expensive drug Dinutuximab beta is needed.

This year, it is not possible to purchase the medicine for budget funds, but it is very important not to waste time and to get therapy in the coming months.

Dear friends, thank you for supporting Nazar for the final victory over the disease!
Together we make a difference!
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22.02.2016, Grodno
  • Diagnosis: medulloblastoma
  • Fundraising goal: proton therapy
Amount needed
3 693 225
We still need to raise
1 058 435
Total collected (%)
71%
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06.07.2009, agrotown Telusha, Mogilev region
  • Diagnosis: tuberous sclerosis, pharmacoresistant epilepsy
  • Fundraising goal: purchase of medicine
Amount needed
33 000
We still need to raise
29 485
Total collected (%)
11%
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04.07.2008, Minsk
  • Diagnosis: autoinflammatory disease: CINDA / NOMID syndrome
  • Fundraising goal: the drug Canakinumab
Amount needed
3 938 000
We still need to raise
867 487
Total collected (%)
78%
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percent
10.02.2010, Slonim, Grodno region
  • Diagnosis: сardiac arrhythmias
  • Fundraising goal: operational treatment
Amount needed
432 715
We still need to raise
343 540
Total collected (%)
21%
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percent
11.12.2006, Mogilev
  • Diagnosis: heart rhythm disturbance:constantly recurrent atrial tachycardia, atrial extrasystole. MARS: ARHZH.NK 0-1
  • Fundraising goal: operational treatment
Amount needed
432 715
We still need to raise
166 675
Total collected (%)
61%
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percent
11.12.2006, Minsk
  • Diagnosis: congenital heart rhythm disorder
  • Fundraising goal: reoperative treatment
Amount needed
409 855
We still need to raise
405 645
Total collected (%)
1%
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percent
15.02.2005, Minsk
  • Diagnosis: congenital heart rhythm disorder
  • Fundraising goal: surgical treatment
Amount needed
409 855
We still need to raise
401 154
Total collected (%)
2%
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percent
07.04.2005, Polotsk
  • Diagnosis: heart rhythm disorder
  • Fundraising goal: operational treatment
Amount needed
432 715
We still need to raise
419 869
Total collected (%)
3%
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