Amount needed
$ 124 122
We still need to raise
$ 98 311
Total raised (%)
21%
Meet the child
From the birth, doctors diagnosed the girl with coloboma of the left upper eyelid, ptosis, cerebellar lipoma and Goldenhar's syndrome. In the third month of her life, Valeria developed keratitis in her left eye, which she managed to stop with the medication.
In 2020, after the relapse in the left eye, doctors performed superficial keratoplasty, and in 2021, two more operations were performed in Moscow on the left eye. In November 2022, after suffering an ARI, Valeria developed neurotrophic keratitis in both eyes.
Vision deteriorated greatly, the girl practically stopped seeing. A deep ulcer formed on the left eye. On January 4 of this year, another operation was performed to save the left eye. Operative and conservative treatment gives only minor temporary improvements, the disease recurs again and again.
Neurotrophic keratopathy is a fairly rare severe disease of the cornea; its frequency is approximately 5 per 10,000 people and is difficult to respond to conventional therapy.
In June 2023, thanks to the help of philanthropists, the foundation paid for 16 packages of the medicine Cenegermin complete with a delivery system with a total cost of $ 245,415 (745,420 bel. rub.). The girl had a complete therapy session for both eyes for 6 weeks.
Parents are recommended to contact the Chance Foundation for possible purchase due to the lack of medicine in the hospital. The purpose of this medicine is indicated. 8 packages of “Cenegermin" are needed. Its cost, complete with a delivery system, is $124,122.
Together, we can help the girl see the beautiful world with its bright colors!
In 2020, after the relapse in the left eye, doctors performed superficial keratoplasty, and in 2021, two more operations were performed in Moscow on the left eye. In November 2022, after suffering an ARI, Valeria developed neurotrophic keratitis in both eyes.
Vision deteriorated greatly, the girl practically stopped seeing. A deep ulcer formed on the left eye. On January 4 of this year, another operation was performed to save the left eye. Operative and conservative treatment gives only minor temporary improvements, the disease recurs again and again.
Neurotrophic keratopathy is a fairly rare severe disease of the cornea; its frequency is approximately 5 per 10,000 people and is difficult to respond to conventional therapy.
In June 2023, thanks to the help of philanthropists, the foundation paid for 16 packages of the medicine Cenegermin complete with a delivery system with a total cost of $ 245,415 (745,420 bel. rub.). The girl had a complete therapy session for both eyes for 6 weeks.
Parents are recommended to contact the Chance Foundation for possible purchase due to the lack of medicine in the hospital. The purpose of this medicine is indicated. 8 packages of “Cenegermin" are needed. Its cost, complete with a delivery system, is $124,122.
Together, we can help the girl see the beautiful world with its bright colors!
