Total raised
€ 27 706,15
Total raised (%)
100%
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Marina Krivonosova
Marina Krivonosova
07/29/2013, Baranovichi, Brest region

Marina Krivonosova

29.07.2013, Baranovichi, Brest region
  • Diagnosis: primary immunodeficiency (SAVI syndrome)
  • Fundraising goal: purchase of medication
Fundraising is over
Meet the child
Marina has primary immunodeficiency, SAVI syndrome. She is the only child in our country with such a diagnosis. The girl is being treated at the Republican Scientific and Practical Center for Children's Oncology, Immunology and Hematology. In world practice, there are examples of successful therapy of such patients with Jakavi. His reception was appointed to Marina for six months. The drug is very expensive, but thanks to the help of caring people, Marinochka completed the recommended course of treatment (6 months) with this drug.

After starting taking Jakavi, positive dynamics can be clearly seen: the girl feels much better, the doses of hormonal drugs that she had to take constantly are now much lower, the causeless rise in temperature no longer torments the girl.

Doctors recommend Marina to continue taking Jakavi for another 6 months.

Marinochka dreams of getting well and becoming a doctor in order to help other people, she dreams of going to school like other children, but due to illness, she is forced to study at home.

Dear benefactors, thank you for helping Marina to continue her treatment with Jakavi! Fundraising is over!
Together we make a difference!
percent
  • Diagnosis: oncological, hematological and immunological diseases
  • Fundraising goal: medications, MIBG-diagnostic, FMI-test
Amount needed
535 000
We still need to raise
292 610
Total raised (%)
45%
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