Total collected
$ 2 050,59
Total collected (%)
100%
leaf_svg
Katya Larchik
Katya Larchik
, Gomel oblast, village of Beryozki

Katya Larchik

Gomel oblast, village of Beryozki
  • Fundraising goal: purchase of blood coagulation monitoring system
Fundraising is over
Meet the child
Dear donors, thank you for helping Katya! The girl is only 4 years old and has already undergone several open heart surgeries. Katya has to take lots of medications. She needs to have regular blood tests to monitor her clotting level, and the dose of drugs adjusted accordingly. The Foundation bought CoaguChek system for Katya. She won't have to go to the hospital every other week any more for having her blood drawn from the vein. Her mum will be able to do everything herself, at home. Just a fingerprick - fast and no pain. Katya's life will become much easier! Your donations make great difference!

Parents' Letter (December 20, 2011)

Dear Natalia,

I need help for my disabled child. First I would like to tell you about my only daughter.

Katya was born on February 21, 2008 with congenital heart disease. Unfortunately she was diagnosed only in June 2008. The diagnosis was unconsoling — anomalous origin of left coronary artery from pulmonary artery, mitral insufficiency, tricuspidal insufficiency, severe pulmonary hypertension, circulatory inefficiency.

The girl has already undergone several open heart surgeries. The first one was carried out in June 2008. It was correction of anomalous origin of left coronary artery from pulmonary artery and mitral valve plasty. The effect didn't last long. Katya's state started deteriorating steadily at the beginning of 2009. In March 2009 Katya had the second operation — she received mytral valve prothesis.It was cardiopulmonary bypass surgery.The effect of the surgery did not last long — total atrioventricular block occured shortly after the operation. In April 2009 Katya was implanted with a unicameral pacemaker.
Unfortunately, our troubles didn't end on that. Katya still has very complicated surgeries ahead since the mitral valve prothesis and the pacemaker will work only for a certain period of time. The state of tricuspidal valve is also not very good. The work of Katya's heart depends on pacemaker.
After having so many surgeries the girl needs to take lots of medications which make her susceptible to allergies. Katya weighs only 13,5 kg at 4 years old. After receiving mitral valve prothesis Katya takes a medication that prevents blood clotting and must have her blood clotting level monitored regularly. Every other week we have to go to the hospital to have Katya's blood drawn from her vein. The hospital is very far from the village we live in. The trip to and from the hospital usually takes us about three hours. We use public transportation. Katya's cardiac surgeon Yuri Chesnov, who several times literally saved her life, and other doctors recommended me to buy a portable device for monitoring INR. But I cannot afford it since I have to bring my daughter up alone — my husband left me and Katya in 2009. I can't work and had to quit my job to be able to take care of my disabled child. Katya is home-bound.

But enough of sad moments. Let me tell you about Katya's personality. She is lively and curious. Sometimes Katya is very impulsive, sometimes very calm. It depends. She is full of boundless love towards me, her grandmother, her Dad though he doesn't live with us anymore. In spite of the seriois health problems, she is developing well (no worse than her peers), she already knows many letters, can count till 15, even tries to count in English (learned from educational cartoons). Katya is fond of painting, colouring, making playdough crafts, play all kinds of games (especially with her granny). Katya loves when I read fairy-tales, stories and rhymes to her. She likes to help me around the house — tidy the house up, do the dishes. She adores taking care of our flower beds. Katya loves going to the circus, puppet show, taking strolls in our park. Despite all the problems, we try to make each day of our life interesting and bright. Though sometimes, when I think about Katya's future, I feel desperate.

I hope so much for your understanding. I hope you will help us to buy Coaguchek.

Thank you in advance.


Sincerely,
Irina Larchik
Together we make a difference!
percent
05.14.2004, city of Novogrudok, Grodno region
  • Diagnosis: juvenile rheumatoid arthritis, Muckle–Wells syndrome
  • Fundraising goal: purchase of medications
Amount needed
7 677 600
We still need to raise
6 967 552
Total collected (%)
9%
leaf_svg
percent
12.31.2017, city of Vitebsk
  • Diagnosis: Right adrenal gland retroperitoneal neuroblastoma
  • Fundraising goal: Anti-GD2 antibody-containing immunotherapy
Amount needed
106 200
We still need to raise
80 810
Total collected (%)
24%
leaf_svg
percent
01.12.2007, city of Minsk
  • Diagnosis: Crohn's disease, period of exacerbation
  • Fundraising goal: purchase of medicines
Amount needed
36 888
We still need to raise
21 075
Total collected (%)
43%
leaf_svg
percent
12.02.2016, city of Lida, Grodno region
  • Diagnosis: congenital defects of the ear with congenital sensorineural hearing loss. External auditory canal atresia
  • Fundraising goal: BAHA bone-conduction hearing aids system
Amount needed
8 600
We still need to raise
4 454
Total collected (%)
48%
leaf_svg
percent
09.09.2016, town of Fanipol, Minsk region
  • Diagnosis: Tracheoesophageal fistula; gastrostomy, tracheostomy, esophagostomy tube user
  • Fundraising goal: surgical therapy
Fundraising is over
Total collected
500 055
We still need to raise
197 153
Total collected (%)
100%
leaf_svg