Total raised
₽ 960 000
Total raised (%)
100%
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Marina Belyakovich
Marina Belyakovich
08/13/2019, Minsk

Marina Belyakovich

13.08.2019, Minsk
  • Diagnosis: tyrosinemia (type 1)
  • Fundraising goal: purchase of the drug Nitizinone
Fundraising is over
Meet the child
Little Marina looks at the world around with joy, enthusiasm and a trusting smile. The girl is not even two years old, but she has already faced serious difficulties. The child courageously undergoes numerous examinations, tests and visits to doctors. Her resilience and love of life is worth learning for many adults. The girl was diagnosed with tyrosinemia. It is a rare genetic disorder associated with metabolic disorders. The body does not absorb the amino acid tyrosine. The first symptoms of the disease appeared when the child was only 9 months old: vomiting appeared, the girl began to lose weight, and liver damage was discovered.

For treatment, the child must be on a low-protein diet for life, take a medicinal mixture without tyrosine and phenyl-alanine, and receive Nithizinone daily. With timely treatment started, the prognosis is favorable, the disease can be kept under control. The drug Nitizinone is expensive and not registered in Belarus.

For 8 months the girl was provided with medicine by the Russian drug manufacturer Obninsk Chemical Pharmaceutical Plant, but soon the enterprise will not be able to provide medicine. During the period of taking the drug, Marina's condition has significantly improved: her physical activity has increased, muscle strength has increased, and liver function has improved.

Dear friends, funds for the purchase of Nitizinone for Marina have been raised! The missing amount for the help of the girl was transferred by the permanent corporate donor of the foundation. We thank everyone for your kind participation in the fate of the girl!
Together we make a difference!
percent
24.09.2010, city of Minsk
  • Diagnosis: glioblastoma of the left temporal lobe
  • Fundraising goal: proton therapy
Amount needed
2 500 000
We still need to raise
2 274 703
Total raised (%)
9%
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percent
08.09.2016, Krinichny village, Gomel region
  • Diagnosis: alveolar rhabdomyosarcoma of the bladder
  • Fundraising goal: proton therapy
Amount needed
3 519 245
We still need to raise
2 645 860
Total raised (%)
25%
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