Total collected
₽ 815 280
Total collected (%)
100%
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Valentin Tikhanovich
Valentin Tikhanovich
02/14/2002, Dubina Yurzdytska village, Minsk region

Valentin Tikhanovich

14.02.2002, Dubina Yurzdytska village, Minsk region
  • Diagnosis: primary immunodeficiency
  • Fundraising goal: Orencia drug
Fundraising is over
Meet the child
Valentine was diagnosed with primary immunodeficiency, CTLA4 defect - a congenital genetic disorder of the immune system in which part of the body's immune system is missing or does not function normally. Pathology can lead to the development of severe chronic infections and inflammatory damage to organs and tissues and needs treatment.

Valentine’s disease is uniquely rare - there are data on the treatment of about 14 patients with a similar diagnosis in the world. Tactics for treating the disease include stem cell transplantation; a donor search has been initiated. The success of treatment depends on the degree of activity of the disease and the severity of its course. Valentine's disease is characterized by a high risk of developing cancer and autoimmune pathology. In this regard, as a preparatory stage, the boy needs a course of therapy with the drug Abatacept (Orencia) to stabilize his condition and reduce the risk of possible complications. Unfortunately, an expensive drug is not registered in the Republic of Belarus and cannot be purchased for budget funds.

Valentine is a positive, calm, friendly guy, he has many friends, he has a beloved younger brother. Valentine is an advanced computer user, he is studing to become a programmer.

Dear friends! Let us help the young man find a healthy life without insidious pathology for a happy future!
Together we make a difference!
percent
12.08.2006, city of Grodno
  • Diagnosis: focal epilepsy
  • Fundraising goal: brain surgery
Amount needed
73 230
We still need to raise
57 667
Total collected (%)
21%
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percent
04.07.2009, city of Vitebsk
  • Diagnosis: 4th ventricular medulloblastoma
  • Fundraising goal: proton therapy
Amount needed
1 893 970
We still need to raise
331 274
Total collected (%)
83%
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