Parents' Letter (July 25, 2012)
Nina was born on November 9, 2009. She was born healthy. Beautiful fairhaired babygirl brought joy to everybody.
But a horrible misfortune stormed into our happy family on February 27, 2011. On that ill-fated day my wife and our two daughters were visiting their granny. Everybody was having great time. The kids were playing under constant supervision of two adults in the living-room. Mom and granny left them to fetch something from the kitchen. Moments later they heard a dreadful cry. The child opened the bathroom door, saw bright jars and boxes and grabbed the brightest one
It was granular chemical clog remover. Perhaps, the jar was not closed tightly or was not closed at all
Anyway, Nina tasted its contents. In a moment the alkali corroded the baby's mouth, bringing strong pain, bleeding and upper airways edema. Ten minutes later the child was in the resuscitation department were the doctors managed to save her from suffocating.
The following three weeks resuscitation specialists were fighting for Nina's life — and she survived thanks to everybody's efforts and prayers. The burn left her with complete damage to the vocal cords and glottis as well as oral cavity, larynx and esophagus stenosis. A tracheostomy was performed and a special tube was inserted into a hole in Nina's neck and trachea for her to be able to breath. For the last 18 months the doctors have been trying to restore the child's esophagus, but there's no possible treatment for the glottis for now. Nina was examined by otorhinolaryngologists at a large Israeli clinic. The specialists agree with our doctors: In Nina's case the glottis restoration is impossible, the child is doomed to wear the tracheostomy tube for LIFE. Nina is 2, 5 years old. At her age she is deprived of the possibility to talk, chew and swallow solid food, and, worst of all, she can't breath. The tube she is breathing through constantly gets clogged with mucus. It has to be regularly cleaned with the help of a special device — as often as every 30-40 minutes. Otherwise, the child will suffocate.
It wouldn't be an exaggeration to say that little Nina's life fully depends on this device. If it gets broken Nina will have to move to a hospital ward again to be in the vicinage of special equipment. Our trip to Israel, as well as the purchase of medical eqipment for domociliary tracheostomised child care put us out of step financially. We need 400-500 Euros to buy a reserve aspirator — that's what the device is called. Under the curent circumstances the amount is just enormous for our family. If your foundation helps us, our whole family will be eternally grateful.