Total raised
₽ 7 677 600
Total raised (%)
100%
Meet the child
Katyusha has a rare autoinflammatory disease. The diagnosis of juvenile rheumatoid arthritis was first made in 2009, followed by a long period of examination and treatment with hormonal drugs. Subsequently, the diagnosis was clarified, the treatment regimen was adjusted. Kate's case was unique and little studied.
To achieve remission, Katyusha tried all the newest drugs, usually effective in combating the ailment, however, in the case of the girl, these drugs unfortunately did not work. To date, she has not been able toachieve remission, an active inflammatory process continues, she suffers from severe headaches, swelling joints and pain...
Considering the rare form of the disease and the complexity of the treatment, given the long period of examination and treatment with hormonal drugs, it was recommended by experts to include in the therapy a drug of the newest generation, an Introleukin-1 inhibitor, Kanakinumab (Ilaris). 12 packs of the drug are needed, the cost of one pack is 640 thousand russian rubles (about 10,700 USD).
To achieve remission, Katyusha tried all the newest drugs, usually effective in combating the ailment, however, in the case of the girl, these drugs unfortunately did not work. To date, she has not been able toachieve remission, an active inflammatory process continues, she suffers from severe headaches, swelling joints and pain...
Considering the rare form of the disease and the complexity of the treatment, given the long period of examination and treatment with hormonal drugs, it was recommended by experts to include in the therapy a drug of the newest generation, an Introleukin-1 inhibitor, Kanakinumab (Ilaris). 12 packs of the drug are needed, the cost of one pack is 640 thousand russian rubles (about 10,700 USD).
Dear friends, Katyusha is on the verge of adulthood, she is a kind and talented girl, dreaming of recovering and becoming a musician. Katya really hopes for our help! Let's help her realize her dreams!