Sasha applied first to the Chance Foundation for help in March 2019. The gill suffers from tuberous sclerosis, a rare genetic multisystem genetic disease that causes non-cancerous tumours to grow in the brain and on other vital organs such as the kidneys, heart, liver, eyes, lungs, and skin. Characteristic tumors in the cerebral cortex, tuberses, have caused severe epileptic seizures, which the girl has been suffering since she was 3 months. During the treatment there were several short periods of remission, but the seizures returned.
Neurological problems led to developmental delay, mental retardation, muscular weakness and other neurological and psychiatric problems. The whole body was suffering from desease. The therapy carried out did not bring results.
The treatment of the disease is aimed at preventing the development and spread of tuberses. By the decision of the republican consilium, the girl is recommended to treat the expensive drug Everolimus for a long time. Thanks to your kind participation, the annual course of treatment 13 packs of the drug was supplied for girls treatment.
Over the year, Sasha grew up, became a schoolgirl and is mastering the first-class program, she is a sociable cheerful girl with a good heart. While taking the drug, Sasha’s condition improved. Given the positive dynamics in the development of the disease, it was recommended that the girl continue treatment with the decision of the republican consilium. For the annual course of treatment, 13 more packages of the drug are needed.
Dear friends, Sasha dreams of being healthy, living without seizures and pain, going to school, making friends and growing up! Thank you for support Sasha for bright future!