Since March 2023, Aleksandr has been treated by the Department of Transplantation. On 9 March, an unrelated allogeneic bone marrow transplantation identical to HLA was performed. During the post-transplant period, Sasha developed a thrombosis microangiopathy associated with a potentially fatal complication. One of the medicines for treating the developmental complication is "Defitelio". Aleksandr was supported through the "Medicines and medical equipment" program.
Sasha needs a total of 126 vials of the medicine «Defitelio» (Defibrotide), which costs $80,600. At the moment, the drug is not available in the RNPC of pediatric oncology, hematology and immunology. Together, let's help the boy get back to a happy and healthy life!
Dear friends, we have collected the necessary amount for purchasing a medicinal product! Thank you to everyone who lends a hand. Special thanks to the friendly staff of OJSC «Minsk tractor works» for their active participation in fundraising for Sasha. By working together, we can help children defeat insidious diseases and return to a happy and healthy life!
27.01.2024. We regret to inform you that Sasha has left us. The Foundation expresses its condolences to all the boy's family and friends.